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Rehab 101

Chuck moved today at 6:30 pm to West Gables Rehabilitation Hospital Room 109! We are very close to home on Coral Way and 75 avenue. Sue will be spending the first night there before real rehab begins. Tonight is just orientation. Tomorrow a rehab doctor will come and plan the next week. Friends Kathy and Charlie just helped us celebrate Chuck’s release from Baptist with Wendy’s burgers and chocolate frostys. Before we end here please Continue your prayers: Our God is an awesome God… praise him for the miracle of life Chuck has received and now let us pray for Chuck’s complete recovery. God bless you Love Susie

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Leaping and bounding right out of the hospital!

Chuck has been poked and prodded, kicked in the head and pummeled, stuck and beaten, sleep deprived, and subjected to a million tests, but he has won the first round. Today I came home early to take a nap (ha!) and Charlie Paparelli called to patiently tell me (amidst my frantic squeals of concern) that the doctors met and say Chuck is medically stable; he is ready for intensive and aggressive rehab. "Got a pencil? Call this place." I was stunned – pencil? write?" Like a deer stalled in the headlights of an oncoming car. So Charlie called the place to say I was on my way (With Debby my loyal support sister driving). The Admissions Director is a friend and ministry sister of mine at St Timothy church!!! It was one of those "Sue!" … "Zely!" (big hug) moments. She took me around the facility – oh my gosh you can see yourself in the shiny floors. He gets a nice room with a window view and there is another bed for someone to stay there (Little does Charlie Paparelli know but I’m thinking he should stay with Chuck the first night!) Kathy and I can stay home and watch a movie and eat pop corn while Charlie gets Chuck settled in. Rehab will be about 6 hours per day. The brain is an amazing creature. It’s like being hit hard on the head. he’s dazed… and he has to work back the brain function, let the swelling go down. But doctors think he will make a full recovery. Praise God in all his wonders my dears because no mortal could ever have orchestrated this storm in any finer manner. Stay with us as we walk this road. keep praying. Love Sue

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Not leaping and bounding but strong

Hi my dear friends. Chuck was visited by many experts today who all tested him… poor Chuck. He just falls asleep and the door opens… "Hi Chuck I’m Tiffany, lift your right arm!!! Good, now the left…" etc etc. Physical therapy got him out of bed, stand, walked him to the chair and proceeded to test his arms and legs. Will take him for a walk down the hall tomorrow!!!! Occupational therapy had him drink, chew up a baby aspirin and brush his teeth. All OK. Dr from physical therapy examined him and said he is strong… will need speech therapy. And how many times did I tell him to shoosh because he is so loud! OK OK I will be so happy to hear him postulating again! Neurologist thinks he is progressing nicely for someone who had his brain beaten up – asked Chuck a question that scared me: "Chuck who is in the room?" You know you can fake a lot and I gulped and held my breath… "Debby, Dave,,(he hesitated as if he knew I was holding my breath),, and Sue" big whoof of air from me. Neurologist also had him repeat "it is a sunny day." which he did. Today he did not sleep through these sessions, but I’m validating every person who ever said you can’t get any sleep in the hospital!!! I left him sitting in a chair like a king. Peter Skipp is coming in to help him eat his dinner. Tomorrow is another big day. Our God is an awesome God! Happy Veteran’s Day to all our vets. Love Susie

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Chuck: in leaps and bounds

When Debby and I arrived at 9:30 occupational therapy (OT) was here – Chuck is lifting his arms, moving arms, speaking (answering questions with a low slow voice) and he washed his hands with a towelette. The temporary feeding tube came out (by accident) last night (hand of God?) and the RN was talking about putting in another feeding tube, but first they would try to schedule a swallow test. The neurologist came and asked Chuck the date… he answered "2 thousand seven…or 9". Well, I thought, he’s missed the financial downturn and the presidential and mid term elections which is not a bad thing!!!  He dutifully squeezed the neurologist’s hand and I gave a report on how the OT went. I asked the neurologist to please help me escalate getting the swallow test done, and indeed I heard him talking to the nurse about it. And indeed the technician came an hour later when Chuck was very drowsy. We all (me, Kathy, Dick and Diane) left the room to allow Chuck to concentrate, and true to his nature, he passed the test. The neuro surgeon visited also and he thinks we’re going for a pretty full recovery: the Ct scan is clear, no bleeding and the brain is back in place (isn’t that nice – poor brain has been abused!). Finally on the physical plain the echo cardiogram shows no disease in his arteries (they are trying to find out why the thalamic infarcs). Cousin Carol advised that the thalamus where he had the three bilateral infarcs is responsible for hot and cold registration which might help to account for Chuck’s hot and cold and sweaty hands. Oh well Chuck join the ranks of we women who are hot one minute and cold the next. Then the social worker came by (she interfaces with the insurance company.) She also was very nice and recommended I go for massage therapy at a wonderful sounding place called Body Mind and Spirit Natural Health Care. Doesn’t that sound nice? For physical therapy he sat on on the side of the bed and did some exercises and then he stood up and moved to a chair (of course with the help of the therapist). He did a bunch of exercises and his range of motion looks good. He’s in a very fancy new room above the emergency center and will receive "aggressive" physical and occupational therapy. Room 2407. God continue to bless our Chuck. Love Susie

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neurosurgery – an art not a science – November 8

Our friend Karen wisely advised me why the neurosurgeons don’t know why Chuck is having seizures and why his case is unusual, unique and well just uncommon… neurology is an art. Today was an amazing day where baby steps seemed like leaps. Chuck saw me across a 30 foot space, I waved at him and he waved back. He blew an air kiss at Diane. He reached out for Rick’s hand and held it. He kind of grinned at Rob and reached out his hand for a University of Miami pin Rob gave to him. He nods "no" his wife’s name is not Pam, "yes" his wife’s name is Sue. He’s coming along. Now of course our contrary Chuck slept through Physical Therapy (who wants to run and jog when he can take a nap instead???? Chuck!) He slept through the neurosurgeon’s 6PM visit, utterly unconcerned that the high priest of surgery was evaluating him. Shake your head here and say "that’s Chuck." His brain must be healing because he’s himself more and more. He sleeps because they are medicating him trying to get his brain to quiet down after being abused by being squeezed under the hematoma. His heart beat, blood pressure, pulse, all vital signs are normal and he has always breathed on his own… The bilateral thalamic infarcs are confusing the neurologists. unusual, unique and well just uncommon…. I guess that’s it. We wait and we pray.

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Chuck’s journey November 4 thru 7

For a few days after I took Chuck to the doctor to see what was wrong with him, I have been running on adrenaline and tears – not great brain food so I forgot about this blog.  But I remembered it about 3:30 this morning and I decided to use it. Friend Mike helped me remember how to write… and so I’ll write here "what happened" as Chuck will want to know "what in the heck happened…"  and so he can read it here…

Let me summarize the past few days… Please see the dates from the bottom up.

Chuck post op day 2  (November 7 written at 9:30 PM)
Hi dear ones. Today is Sunday. I went to 8am Mass that was said by a priest who is praying for Chuck "Father, mi esposo esta infermo," I said, pointing at my head. He took me into his arms.  During Mass which was in Spanish, I prayed a big long prayer for Chuck’s recovery. Please you too pray for Chuck. 
 

What a roller coaster our Chuck has taken us on. Today Debby and I arrived at the hospital and there seemed to be little change. Chuck had a seizure at 2am and he was sleeping it off. His neurosurgeon came in about 10am while I was on the phone with Jon Lynn getting advice on a second opinion consult.  We assembled a neuro team of the best of the best with Chuck’s neuro surgeon, Dr. McDreamy, and the "best of the best" neurosurgeon at Baptist. The story of how we found Dr McDreamy is a story in itself. Bear with me a moment…. Debby spotted him standing out in the central area. he was dressed in a leather jacket and blue jeans. I looked at him and swooned and called Penny over to look…   We stared at him for a while and then I pulled myself back together to go tell the RN in charge of Chuck that I wanted the consult with the "best neuro at Baptist."  "Well he’s sitting right over there," he said. …   "Yikes, what do I do?" I asked Rick who said, "go get him! bring him in here!"    I did and he did.  This new neuro team consulted over Chuck’s CT scan and then over Chuck himself.  The neuro team says we will take small steps and an ICU nurse I know from St Timothy church says with neuro it’s wait and wait. He’s had several CT scans and his neuro surgeon says "this is the most unique and interesting case he’s seen in 20 years."  Chuck we could stand you to be a little less "unique and interesting."   (the RN watched me assemble this dream team and asked me ‘who I know" and I sagely pointed up…. (thank God! and Lyn/Klein)
 

Chuck grew in awareness as the day progressed. His old friends Rick (navy), Dave (FHP partner), Jon Lynn and Rob Klein (law firm partners where Chuck worked) all stimulated him and drew responses from him. Rick got him to wiggle his toes and Rob drew a smile.  We ask for prayer for Chuck’s recovery and walking out of this place. More if you don’t mind… tomorrow. God bless you, Sue   
 

from our friend Danilo from Venice Italy:  Dio lo benedica (God bless him).
From St Augustine women’s Emmaus: "Chuck Peabody – has some complications… Doctors are treating post 
surgery seizures and evaluating some tiny infarcs in the brain.  Had 
subdural hematoma.  Divine intervention…..for this we pray that 
neurologists can heal everything about this."
 

November 7 (6:12 AM)  The Emmaus family
Please convery our thoughts and prayers to Chuck and may God’s mighty and protecting arms be on both of you and may each day bring you peace as you await a Chuck’s recovery.  Prayer for Trust in Jesus 
O Christ Jesus, when all is darkness and we feel our weakness and helplessness, give us the sense of Your presence, Your love, and Your strength.  Help us to have perfect trust in Your protecting love and strengthening power, so that nothing may frighten or worry us, for, living close to You, we shall see Your hand, Your purpose, Your will through all things. AMEN…  Iris, Laura and Joy. It is so comforting knowing 3 churches and many Emmaus family members, men and women, are praying for Chuck. We’ll need prayers. This is very scary, but people are praying who never prayed before, people see me leaning on the Lord, praying the Rosary, praying, and they too are influenced. Chuck has so much talent. I am asking the Lord to save him and put him on an Emmaus team. So strong, so self willed, so … so much clay for God to work with!!!!   let us pray… Please forward as you see fit (to Emmaus sisters – I’m thinking of Ana Cairo and others) Love Susie 
 

Chuck post op day 1  (November 6 9:30 PM)
 

As you see there are many people on this list!  I call as many as I can but this is traumatic and I can’t often talk about it. I’m supported by, two friends (Debby Johnson and Pete Skipp) here to hug and help me to pray, and believe me, you all have helped me so much. Again, the role we all play here is prayer. I’d like to try to update you every day and ask you to continue to ask God for healing for our Chuck. Each of us has a special connection to Chuck even if it is only through your knowing me (some St Timothy friends have not yet met "the man Chuck," but you will one day! )   I can’t speak too much about this or I start crying so I hope these emails help and one day… Chuck will hear of how many loved him and prayed for him over these hard days. Your prayers keep me strong. Pete reminded me today at lunch when I saw the RN who put in Chuck’s feeding tube and I started to cry…… "stop going down that road, stop, and say a prayer," he said.. And that settled me down. 
 
To summarize. Chuck probably bumped his head on the car while he was loading equipment during a 3 day shooting range with FHP. He was under great stress to master a new weapon and indeed he shot a Master level in the course (I think 39 out of 40). But it exhausted him and sometime during the weekend he bumped his head.  Thinking the exhaustion and stiff neck he got were from the exertion we missed the bumped head. He began to lose functions, balance, signature and putting on socks and I made him an appointment with our family doctor who pretty much judged correctly that Chuck needed an MRI. That same afternoon we got heavy news that Chuck had bleeding on the brain and needed to get to the ER immediately. He was admitted to the ER on Thursday afternoon (11/4) about 6pm and lay in the ER until 3pm Friday. Surgery for a sub dural hemotoma on Friday (11/5) at 6pm followed by a rough recovery. He was finally moved to ICU Saturday morning (11/6) at 5:30am. When I saw him this morning (Saturday) at 7 I was frightened at the enormity of his suffering. He is basically non responsive and he is rigid and trembling at times. Other times he is fast asleep.  .. At about 10:30 am the surgeon reported that the surgery went well, the hemotoma has drained and there appears to be no more bleeding, but something else is going on inhibiting recovery that a neuro surgeon has to deal with. he ordered an EEG, MRI and MRA. These are scans of the brain looking for seizures.  The physician on duty said Chuck should be awake but the brain issue is causing the sleeping and tremors… so wait for the neuro surgeon.  At about noon they put in a feeding tube, which I know he needs, but it freaked me out. All I could see was long term this condition continuing. Peter’s advice to pray and give it to God helped me focus on the short term. he needs nutrition today and tomorrow…   We stalked the halls and made the Nurse Practitioner make 3 calls to the neurosurgeon who finally came at 8pm. The physical assessment indicated he responds to pain on fingers and toes (shades of prison torture in my eyes), his pupils respond correctly to light, his toes curled with the Babinsky test, but the clenched hands and tremors when he is stimulated might be seizures keeping him from communicating. Treat that first. …  he will be medicated with 3 new medications hopefully tonight… and we will see him in the morning.  I want you to keep praying and realize there is nothing else you can do at this time. Debby and I summarized and concluded in the car on the way home that this will take time (and that is what the neurologist said although I don’t know why we couldn’t see him at 10am this morning… we waited a day just watching Chuck twitch and sleep. It was awful. Please continue to pray and let us pray for Chuck’s recovery and health. I will send again tomorrow night. God bless you. Love Susie 
 

November 4 (10:43 PM)
Hi my dears. Today has been the hardest day for me as I had to be the strong one… Since he went to an extreme FHP training a few weeks ago,  Chuck has been feeling bad, headaches, exhausted, and finally when he had trouble getting his socks on, I put my foot down and got him to the doctor today at 10:30am (a very blessed find of a doctor from my church came to me by church friends). Doctor’s very able assistant got us scheduled for an MRI. The MRI tech alerted the Radiologist who moved very quickly to write up a preliminary report and by 6pm we were at the Baptist Hospital emergency room…. they were waiting for us. They covered Chuck with tubes and had a stroke kit ready and 2 people getting his history. Fortunately I know him well and was able to provide much information. The bottom line is he is having a sub dural hemotoma (hemorrhage) on the brain.  This is the reason everyone moved so quickly. They took him for a CT scan and confirmed what showed as bleeding on the MRI, but got some good news. It is veins bleeding and it is unlikely it is an aneurysm or embolism. I left him well cared for, ordered not to move and to relax, and reading a book. He is being moved from ER to neurological ICU and will see neurosurgeon tomorrow who will monitor him for a few days to see if bleeding stops…. It should stop and recede…  We know no more until tomorrow. This is day to day.  I’ll go back to the hospital after Mass and stay with him tomorrow. 
 

My role, you ask?  To carry his stuff, to document and give information, to give him his book when he needed it, and to pray. And that my dear is your role!  Say a little prayer for our Chuck. He will have to change his wild man lifestyle…. But he is alive and will live a long good life.  I will email you again tomorrow evening and keep you posted. I expect a full recovery and we will follow all orders and directions of neurosurgeon. I promise!  God bless you and God bless our Chuck. Love Sue 
 

 

 

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On the Road Again

Some people say I don’t write about Chuck enough… I know everyone loves Chuck better than they love me because Chuck will stay up late watching movies and drinking Scotch, and I’m usually yawning and trailing off to bed at 9:30. What amazes me is how some of you are then up again and perky at 7am with Chuck … What is this? I’ve always been the one hiding up in the tree with a book. So… I packed my paints and too many books, and I’m jumping into the van to "travel America" with Chuck.

If we ever get out of here…… Chuck is still packing. Can anyone ever imagine us actually thinking we could take the motorcycle????? We did take the motorcycle on a trip once, and we will again. Next year. This year I guess our excuse is we have to take some gifts and communications gear to Tennessee… So! Say a little prayer for our overloaded van tootling along the turnpikes of America. I will try to write on the web site…. God bless America! Susie.

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November musings

This will be our first late autumn visit to England and although we have been this cold in June, we haven’t witnessed the harvest festivities of autumn yet. Witches decorate the stores, and the "kids" carved pumpkins this morning. The oldest "kid" is almost 30, and the youngest is near 25, but joy fills all hearts at harvest-time.  This visit to the West country of Cornwell it has been a real pleasure as I tried to pet a wild pony on Bodmin moor, and as we ferried to Padstow to eat fish and chips from a box while enjoying sunshine on our faces; watching Sally’s three girls and their good friends laugh and enjoy youth, and worshipping once again at the small Catholic church called Saint Peter in Bude.  A magazine I read called Catholic Digest (November 2008 issue) explains that November is a dreary month that begins the dark quarter of the year beginning November 1 (All Saints Day) and ending February 2 (The Presentation of Jesus). To challenge the darkness and something like the fear ancient peoples felt in the dark, we escape into fantasy dressing up in funny/scary costumes and visiting the lighted houses in our neighborhoods. At this time of year, we light fires and candles to dispel the darkness, we have parties, we tell tall tales, and we escape the darkness.  The pantries are full. We have harvested the fields and killed the pigs, geese and other animals we bought early in June to "fatten up."  Our friends Mervyn and Brenda showed us their little pen with 2 pigs who will dress holiday tables in late November. Brenda’s geese will probably be saved for Christmas dinner. Families gather and the feasting "provides a foretaste of the everlasting banquet of saints," and reminds us that eventually we will be "gathered" into a hospitable heaven. Chuck and I look forward to celebrating festival days on the south coast of England in Dorset in Kingsbridge, Lyme Regis, and Abbotsbury before heading for the cruise ship that will leave Southhampton on November 6. The school children will all be off on holiday for a week called "half-term" and the party week will be in high gear until November 2 when England will pull up the covers and face another chilly winter. Many thanks to our English hosts!  Cheers and God bless us all! 

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England again! The Grand Adventure Part II

On October 16, 2008 a flight attendant woke me up asking "omlet or cereal"? I actually slept on a trans atlantic flight!  I wisely chose cereal and so began my first English day on a healthy note. The view from my window seat was of sunrise over thick clouds that blew away as we passed over Ireland and turned South over Scotland towards London. This is the reverse of the route the Pan Am flight was on when it was blown out of the sky over Lockerbie. Visiting Lockerbie is like a chapter in our lives that we all have to open. Many people died for a useless cause.  The sky cleared over England and the sun shown. We lost 40 degrees since Miami as the pilot advised it is 50 degrees (was 90 in Miami). Last night on the plane I watched "swing vote" a light Kevin Costner piece with heavy places about an important election question for Presidential candidates… "If America is so rich, why can’t I feed my children?"  Flying over the Thames we saw a new stadium perhaps for the 2012 Olympics. a fine round domed stadium, perhaps for the opening ceremonies. Houses of Parliament look good, Westminster Abbey.  All seems well. The adventure begins!  We picked up the rental car and headed out on the great M25 and M23 south towards our first stop in Sussex. We are visiting friends in a small village. They took us to a Brewery in Lewes. a small quaint town with shops and pubs!  We made plans for them to come to Miami and bask in our sunshine. As well we invite all friends to come to our sunshine!  We are already eating too much and drinking the local ales. Our hosts have a sweet old home (1600s built) and 2 sweet dogs Molly and Suki. We’re off to Battle Abbey in East Sussex. It is the sight of the 1066 battle of William the Conquerer a Norman who became king. God bless us all!

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What can we do with America?

What can we do with America? America’s in trouble and the rest of the world seems to be falling down with us! That tells us one good thing… that people of this world look to us for leadership even if we have let them down recently. I’m not sure that as an individual American, I can do too much for the economy, but with our vote, we can change the leadership of this country. And with prayer we can change things too. I don’t think we can do anything else. I already voted by absentee as I’ll be away for the election, and I for one intend to pray a lot and try to be a little nicer and help someone out who needs help. That’s all we can do isn’t it? The Gospel reading this Monday was The Good Samaritan. You remember the story don’t you? A guy got beat up and robbed and left for dead. The ones who were supposed to help (because they were the ones in power) walked around him, probably casting their eyes away and saying it wasn’t their job. But do you know what the Samaritan showed them? A single person and a little kindness goes a long way to fixing things up. Kindness and justice can defeat greed and the downslide our world seems to be going in. God bless us as we try to fix our country.