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Susie's musings

Need some prayer

Hi dear friends and family. I’ve been thinking we need to pray more. That will buttress me up… I guess even though I know this recovery thing will take a long while and we might get a little different Chuck back … even though I KNOW that… I’m not acting so. So I pray for patience and gentleness in the face of our Chuck who says he doesn’t want any fussing, but then says I don’t take care of him. Who says he doesn’t want ice or ibuprophen but then says I never ice his shoulder… yikes!!! I come at him swooping in with ice and he grumbles like a son of a gun and says I make it hurt. Oh boy am I growsing today!!!! That’s why we need prayer. I’m praying that Chuck is just foggy from the seizure medication which he still takes 250 mg morning and night and then gets foggy and "feel lousy" … I hope that the 250mg Kepra is what is making him foggy anyway…. I have considered just stopping the med but I’m also thinking I crossed the doctor line before and maybe just this once I need to ask the neurologist and then listen to him… …. I’ve been asking for another meeting with neurologist to reduce even further the med and consider stopping it so Chuck can be without drugs to let his brain start working at 100% and also to see if thyroid number comes down. Chuck is at 5.7 which is considered hypo thyroid, but some studies say brain trauma can affect thyroid. I think we need to see what the unmedicated person can do and then move from there. And then we can see what we’ve lost and work on that. Send advice and pray – I’ll accept both. Love Sue